Hi. New site, new blog. Why? I considered, and even actualized, turning all this off, leaving the web entirely. Most of my domains dump out at my resume now. I was, am, tired of the politics of just being here, feeding the LLM machines. Just by putting this text on the web, I am feeding the slop machine. I can resist with various methods but the developers of the crawlers are smart and will get here regardless. Anyway, I’m ranting. Let’s try this again.
Hi. Why are we here? I don’t know why you’re here. I am here because a few things have happened to me recently and maybe talking about them will help someone. Specifically, in the last two years, I’ve discovered that I’m autistic and ADHD and, more importantly, both physically disabled and stricken with a rare autoimmune disorder called GPA (Granulomatosis with Polyangiitis). It’s been a hell of a time.
There are lots of folks, better qualified folks talking about being autistic and ADHD. There are lots of folks talking about being physically disabled. There are not many folks talking about GPA, just due to its rarity. Maybe it’ll help someone to find this account of my experience with this rare autoimmune disorder and see they’re not alone. Maybe I’m wasting everyone’s time. I guess we’ll find out.
So the idea is I’ll prattle on here about my experience with GPA and my life as a new chronically ill, disabled, person. I am sure I will also post about other stuff from time to time. This thing has a tagging function and creates RSS feeds for each tag. Choose your own adventure.
And now, onto the rest… (and hopefully not doom myself to never post again…)